Monthly Archives: February 2012

And so it comes to this…

In the past I’ve done only a few philosophical posts betwixt the literary or writerly *cough* posts, but now I am finding myself longing for conversation of just about anything.  There are many excellent blogs out there that dedicate themselves to the discussion of industry and writing technique/ideas  - this isn’t one of them.  Truly, I like READING those blogs, but I don’t enjoy writing them.  It feels quite like pulling teeth.  Since I prefer to keep all my teeth where they are (or perhaps a slightly new location should I endeavor to get braces again in the future) I decided I should step away from even the pressure of doing so.  As a result it seems more prudent to me that I simply WRITE and the best way for me to do this is to write about anything/everything that I am interested in.

It’s just like Heinlein said:

A human being should be able to change a diaper, plan an invasion, butcher a hog, conn a ship, design a building, write a sonnet, balance accounts, build a wall, set a bone, comfort the dying, take orders, give orders, cooperate, act alone, solve equations, analyze a new problem, pitch manure, program a computer, cook a tasty meal, fight efficiently, die gallantly. Specialization is for insects.

For those who have checked out my other blog (also long neglected) I will still be keeping women’s health/birth stuff over there as well as some other interesting (hopefully) tidbits about the medical industry and legislation that impacts this.  This one is now going to be home to all the meanderings and topics that intrigue me and, perhaps, will be slightly controversial.  With any luck all of you, yes – YOU, will want to come by and share your views still.  At least I hope you do.  Here’s to what looks to be a very interesting adventure.  Cheers, folks!


Celiac Disease

It sounds really scary, doesn’t it?  Anything with disease in it is seems to cause heart palpitations, perhaps a twitch of the eye, or shoulders to tense.  Celiac Disease caused no less of a reaction in me (except for the eye twitch – those are reserved for when my son hits this really loud and really high pitch).  Admittedly, now that I know more it still strikes a bit of fear in me.

The nuts and bolts of it are this: Celiac Disease is a symptom and an autoimmune disease.  It is literally defined by villous atrophy.  Those small little things in your small intestine that help you absorb nutrients?  Well, they’re blunted in someone with celiac’s and thereby hinders their ability to be healthy by causing malnourishment.  In some patients celiac presents its self as a bit of iron deficient anemia and perhaps, as is the case with my son, what is called a failure to thrive (he didn’t gain much weight that year).  It sounds so simple; such a very undramatic thing.  In reality it is sneaky, persistent, and destructive.

The reason this isn’t merely a case of gluten intolerance (and I don’t mean that as a way of diminishing that issue – a dear friend of mine has it and chronic pain is no walk in the park), but literally a level of intolerance that is more akin to actual allergy.  The reason it is categorized as an autoimmune disease is because of what happens when the person with celiac’s eats gluten.  The enzyme that our bodies produce in order to fix our intestines is called tissue transglutaminase and in people with celiac’s their bodies produce antibodies to destroy it as the gluten actually destroys the villi.  This is why a blood test looking for these antibodies is so vital in diagnosis (and, honestly, why a small intestine biopsy is not necessary).  In many cases physicians will also do tests called the IgA and/or IgG test to see what other antibodies the body is producing.

All of these things disappear when gluten is no longer present in the individual’s diet.  So much so that if they had stopped eating gluten in the weeks before these tests were done they more than likely would show a negative result.  This is possibly why so many physicians still opt for the small intestinal biopsy (might also be because it’s a rather costly little test despite the fact that it still boils down to getting just the right samples for a positive result to be shown; minimal damage/early stages makes it that much harder to get the “right” samples) for a definitive diagnosis.  Damage done to the intestines, depending upon the duration of gluten ingesting as well as age at diagnosis, can be reversible.  However, remaining gluten free is absolutely imperative for a patient with celiac’s.

When a person’s body can not handle gluten the risk of colon cancer, small intestinal adenocarcenoma are both increased should the individual continue to ingest it.

Now, the fun part.  The elimination of gluten is not merely getting rid of wheat or obvious wheat byproducts such as flour, but also avoiding spelt, barley, rye, kamut, triticale, malts, and according to one source couscous.  This also means any derivative of the above.  Sweeteners and thickeners are both very suspect until you know their origin.   Also, beware of vitamins as many of them are contaminated by or contain wheat (among other allergens).  Same goes for dried fruit.

I’ll save my longer rant for another time, but since going gluten free I must say this:  The US has massive issues with processed foods and cross-contamination.  Needless to say this is a huge adjustment for my family and, writing wise, has taken up much of my writing time.  It is no small thing to become in the know about all this stuff never mind trying to find a way of maintaining a balanced diet.  What I wish I knew before all this was how to read a nutrition label.  Not exactly the fun type of reading I usually prefer.

Anyone else have to deal with this?  Perhaps a family member or friend needing a dietary restriction?  Any sanity saving tips?


A Tale of Two Views

As is often my habit I engage in what I view as philosophical debates on facebook.  I acknowledge the futility of these actions, truly, but in this manner I’m rather like a cow through an electric fence…  MOOOOOOOOOO!!!!!!!!!!  [I am nothing if not extremely self aware and critical.]

More recently I engaged in a debate of which has spurred me to write a few posts about celiac disease, non-celiac gluten intolerance, and living the gluten free life – but for now I wanted to talk about something else.  Something I had never had to consider before.  Specific and limited dietary requirements of a child.

There are many food allergies out there, to be sure the variety is probably just about as long a list as the foods that are eaten, but the top five are substances many of us have copious amounts of in our diet.

  1. Milk – Luckily for adults, children are by far the most likely age group to have allergies to milk.  Most children grow out of this allergy during their early childhood.  Individuals unlucky enough to remain allergic to milk their whole life will never get to enjoy some especially delicious foods, such as cheese and ice cream.
  2. Tree nuts - Allergies related to tree nuts are responsible for some of the most dangerous and possibly deadly food allergies in existence.  Some examples of commonly consumed tree nuts: walnuts, Brazil nuts, pistachios, almonds, and cashews.
  3. Peanuts – The amount of people that are allergic to peanuts is very close in number to the amount of people that are allergic to tree nuts.  Individuals allergic to peanuts must also remember to avoid any foods that contain even trace amount of peanuts, such as certain types of Asian or Mexican dishes.
  4. Wheat – Children and adults alike often suffer from allergies to wheat.  An allergy to wheat can be very difficult and expensive to overcome.  This is because wheat is by the far the most commonly used grain product in  the United States.
  5. Eggs – As many as 1.5% of American children are allergic to eggs!  Luckily, just like milk, most children outgrow this allergy by the time that they are three years old.

Given this list as well as substantial documentation regarding nut allergies you can guess the substances that are most typically banned (in case you couldn’t, it would be peanuts and tree nuts).  There have been cases where special measures were taken where six year olds in a Florida school were told they had to wash their hands when entering the classroom, wash out their mouths, all while a dog capable of sniffing out nuts (there was NO good way to phrase that, sorry) was brought in to ensure the room was safe for one child.  In instances like this it’s easy to question whether or not a ban on nuts would have even made more sense.  Certainly it would have been cheaper as well as easier on teachers should a ban have actually been followed.

Forgetting for a moment that bans never work, I thought about what would happen if they did. If all parents followed the rules for the sake of one child – what would happen?  Would anyone’s nutrition be lacking as a result of this measure?

The undeniable answer for me was this:  My kid.  Other kids with celiac’s or wheat allergies.  A child raised vegan with a soy allergy.

What makes any rule that would have adverse impact upon the health of other children, but possibly almost/maybe/kind of – sort of aid in insuring the health of another (but not really, because there’s really no way to know whether or not the food has actually been exposed to nuts – like my gf pumpkin muffins), tenable?

The assumption seems to be that the minority, when it has special needs, should be catered to by the majority even when sacrifice is required OR that the majority should have its way even if it penalizes the minority (majority rules, yes?).  Perhaps if one never stopped to consider other people’s dietary restrictions and needs the peanut/nut argument would be easy.  If it saves a life/lives then it’s good, right?

Forget for the moment that this pseudo-philosophical argument is the same one that’s gotten the US into countless wars, and try and ignore the fact that we are really addressing children- is there ever justification for putting in place a ban that would, by putting direct restrictions on other kids’ food sources,  adversely impact their/his/her health?

My stance is pretty simple, even if it sounds without compassion, and that is no.  We can not ignore the needs of all other children and operate on the assumption that what is being demanded will NOT have a negative effect (talk to folks with celiac and ask how much of their diet is comprised of nuts, or vegans).  This is merely a justification for the needs of that child to supersede all others.  The same issue could be brought about through addressing kids with extreme autoimmune disorders that are not related to food allergies and thereby can not have vaccinations.  Would it be fair to force every child to have every single immunization available because one child is that much more susceptible to diseases and viruses?

I know these are hard questions, and some of the answers are really hard to come by.  Admittedly, the thought of people thinking I’m cheering for children to die forces me to be quiet more than I even think is prudent.  In the end I have only one real thought:  ”My child’s health, which is now good and was hard won, will not be sacrificed (never mind forcibly).”

There is no advocating of punishment in these words as I rebuke the call for bans (I really will address how they don’t work in another post), but merely the assertion that the world is as it is and to make rules that DO adversely impact a population is to punish others who did nothing wrong beyond not having the worst known food allergy.  If health and thriving are what matters then is it ever appropriate to choose who is permitted to?


Just Call Me “Slacker”

I was so going to be all over the blogging world before Christmas.  Barring that I was going to be on top of EVERYTHING by New Year’s.  Yeah.  Now it’s almost March and I’m really, really trying to get on top of things again.  The truth is I’ve been in quite the funk.  Lots of guilt around being a mom of a kiddo with Celiac Disease as well as the ridiculous drive to become the supreme goddess of the hearth and home.  Perhaps the drive to be so isn’t ridiculous, but the goal its self sure as hell is.

My reading has been limited, sanity even more so, while sleep has been at a low ebb since I was pregnant.  And my daughter is now 5 months old.  Luck you guys – you get to read my sleep deprived rants!  My apologies in advance.

Life is often too busy for me to do all I wish, but it was only during a self imposed limiting of time on facebook that I realized there are many things I wish to talk about as well as read – and facebook was not the best venue for either of these.  Honestly, I almost decided to delete my account today.  Then I realized there were many wonderful things I can see on that stupid site and that, perhaps, I was just strong enough of a person to be able to control how I interact with it.

Now, how were your holidays?  Did y’all have a good one?  Any new projects you guys are working on?


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